Avery's Bucket List

Sometimes I think the universe whispers to us and other times I think it shouts.  I read a post earlier today about a little, 5 month old baby girl with SMA (Spinal Muscular Atrophy.) Her name is Avery and her parents started a blog called Avery's Bucket List  http://averycan.blogspot.com/ . They (and friends) made a list of all the things Avery would like to do before she dies. Babies with SMA type 1 rarely live to the age of two. A tiny little baby should not need to make a bucket list, she should have days and days and months and months and years and years ahead of her. Alas, Avery does not. The disease is progressing. . .

She has already lost the ability to move her legs, her parents know her time is limited but they are working to put a face to SMA. Perhaps Avery's beautiful little face will be the one that inspires someone famous to take up the cause of SMA, maybe a brilliant mind will see this pretty baby and take an interest in the disease and that mind will be the one that starts the research that eventually will find a cure for SMA.  At present there are no clinical research studies looking for a cure for SMA. Avery's parents know that help can not come soon enough to save her, but by putting a face to SMA, they hope it will help a child in the future.   

 

None of us have any magic answers but we all can do something to help - please look at Avery's blog and read her bucket list. Is there anything you can help with? At the very least we can help spread her story, we can help make her the face of SMA. The universe shouted today: SHARE AVERY'S STORY! I listened, I'm sharing. I hope you will too.